The holidays can be especially difficult for those affected by dementia. For those living with dementia, their caregivers, and loved ones, the season can bring stress and apprehension rather than joy and cheer. But with some creativity and flexibility, the holidays can still be meaningful and memorable.
Planning ahead is key. It’s important to consider the person with dementia’s preferences and abilities in order to create the most comfortable environment. Simple things such as discussing and deciding on plans together, and providing a limitation of guests and activities to avoid overstimulation can be incredibly helpful in allowing them to participate in the activities they love. Holiday meals can be an overwhelming and disorienting experience for those with dementia; be respectful of their need to disengage and provide a comfortable place for them to retreat to when needed.
The Family Caregivers Center of Mercy and Mercy Medical Center have adopted a more contemporary perspective of dementia that emphasizes fostering an inclusive environment. This plans to prioritize the wellbeing of those with dementia, promoting giving them opportunities to express themselves and feel in control of their life, while still providing safety and support.
This approach recognizes that the holiday season doesn’t have to lack joy and happiness for those living with dementia. With thoughtful planning and understanding of what the individual needs and can participate in, it is possible for those affected by dementia to still enjoy the season and make great memories. Small moments of joy and connection, even if it’s just enjoying a sip of cocoa or reminiscing about a favorite ornament, can go a long way.
Kathy Good volunteers as executive director at the Family Caregivers Center of Mercy in Cedar Rapids. Kathy was the caregiver for her husband, Dave Good, who passed away in 2015, 12 years after being diagnosed with Alzheimer’s. The Center of Mercy works to provide education, counseling, and support services to assist caregivers and their families, offering guidance to understand and adjust to changes in their loved ones’ behavior and lifestyle. Their programs are often tailored to individuals, and create an inclusive and supportive environment for those living with dementia and for their families.
