The Albanese Government has made good on their election promise by launching a dedicated helpline to support Australians diagnosed with rare or complex health conditions. This helpline, called the RARE Helpline, is now fully operational and staffed by a team of qualified professionals from Rare Voices Australia (RVA), including experts in psychology, social work, and Mental Health First Aid.
Since its soft launch in July 2023, the helpline has already received numerous calls from individuals all across the country, offering advice and information on over 45 different diseases. This invaluable service aims to cater specifically to the unique needs of around two million Australians living with rare and complex health conditions.
The fully operational RARE Helpline boasts a compassionate and knowledgeable team that is available to answer queries and address concerns. Their expertise enables them to provide reliable information on specific diseases and offer guidance to those seeking a diagnosis.
One of the helpline’s primary objectives is to ensure that individuals with rare or complex conditions have access to accurate and up-to-date information. This not only empowers them to better understand their condition, but it also assists them in making informed decisions about their health and treatment options.
In light of this development, the Albanese Government has expressed their commitment to improving the overall support provided to individuals with rare and complex health conditions. The establishment of the RARE Helpline reflects their dedication to enhancing the lives of those affected by these often challenging and isolating conditions.
Rare Voices Australia is thrilled to be a part of this initiative. The RARE Helpline fills a significant gap in the support system for individuals with rare conditions, offering them a lifeline to information and assistance, says Jane Smith, CEO of Rare Voices Australia.
The RARE Helpline represents a critical step forward in ensuring that Australians with rare or complex health conditions receive the support they need. By providing access to a team of trained professionals, the helpline offers a much-needed resource for individuals grappling with the challenges of their conditions.
Through reliable information and compassionate guidance, the RARE Helpline aims to ease the burden on patients and their families, fostering a sense of understanding, connection, and hope. The availability of this helpline signifies the government’s commitment to improving the lives of individuals with rare and complex conditions, ultimately creating a more inclusive and supportive healthcare system for all Australians.
